“There is no appropriate process in place to look at these

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needle derma roller A distraught mum of a young girl with an incurable disease that keeps her the size of a five year old is begging the NHS for treatment.Enola Halleron, 11, suffers an incredibly rare and debilitating condition known as Morquio syndrome which means she will never grow taller than her current height of 97 centimetres.For the last six years a clinical drugs trial has kept her terrible affliction, which hinders her mobility and breathing, at bay in fact the youngster has felt significant improvment.But now compassionate funding for the wonder drug called Vimizim has come to an end, and NHS England are currently considering whether to pay for the treatment, which costs per patient per year.(Image: Mercury press)Enona’s mother Donna, 41, who works as a part time teacher, today pleaded with the NHS to give the funding the green light, and slammed those who are able to receive gastric bands and breast augmentations funded by taxpayers.Mum of two Donna, from Blackburn, Lancashire, said: “My daughter desperately needs this drug otherwise her health will slowly deteriorate.”For the past six years Enola has been having weekly infusions of Vimizim, and although it cannot reverse the damage the disease has already done, it halts the progression, and Enola’s health has definitely improved.”At the moment Enola has mobility, but if she cannot continue taking the drug the disease will progress and it won’t be long before she is not mobile and her breathing will deteriorate.(Image: Mercury Press)”It makes me incredibly angry to know that my child is suffering through no fault of her own, yet there are operations such as gastric bands and boob jobs, and operations to cure smoking related illnesses that are available through the NHS, and cater to a lifestyle choice rather than an illness.”Enola’s condition is not a lifestyle choice and she deserves this treatment. I can’t function because I am so worried about what will happen to my daughter.”By denying Enola the drug, the NHS are reducing her quality of life.”There is no appropriate process in place to look at these orphan drugs for ultra rare diseases.”They are failing in their duties and we suffer as a result.”Before Enola started the trial she could only manage a few steps without having to take a rest, but now she is more mobile and breathes clearer.”She manages a full day at school and is able to take part in activities such as swimming, dancing and singing.”Her confidence has improved as she is in school more often and is able to take part more. I do not want to see that taken away from her.”The price is per patient per year, however the price the NHS would pay would be significantly less than that due to a patient access scheme offered by the pharmaceutical company.”Vimizim is available in 22 other countries in Europe including Turkey, Germany, Hungary and Greece.There are only 105 known cases of Morquio syndrome in the UK and those with the condition have an average life expectancy of 25.Enola had her last infusion of Vimizim over a week ago, and the family is now eagerly awaiting to hear about whether NHS England will provide the drug.Enola was diagnosed with Morquio disease when she was two years old after doctors noticed an abnormality with her hips.She has grown just 5cm since she was five, which makes her almost 2ft smaller than the average 11 year old girl.She also only weighs around two stone more than she did when she was born http://www.microskinroller.com/, and wears clothes that would fit a three year old child.Donna, who also has another daughter Cora, 16, said: “I don’t want every day to be a battle for Enola needle derma roller.